Most of the PWH are young people. Unfortunately, sometimes this disorder leads them to disability and stress. It also limits their social activities like schooling, playing, making friendships, socializing with others and employment.
Through the Project “Young Voices on Hemophilia in India
”, HFI is expanding its youth programs to foster the next generation of leaders and ensure that they are well prepared to take over a leadership role and sustain the economic and organisational sustainability of HFI and improve living conditions of PWH in India. The activities include:
- Addressing the problems and needs of the youth by formation of groups at chapter level. They gather at least once in a month and share their sufferings and understanding of life they lead, exchange views and encourage each other. Occasionally games, get-together, tour/picnics and camps are also arranged.
- Seminar/workshops and training cover leadership, creativity skills, management, project writing, fund raising, career counseling etc.
- Sessions are also arranged to improve hemophilia management