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| WFH delegation visit to India |
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WFH delegation visit to Mumbai |
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Excerpts from Round Table Conference - Chennai
The Roundtable started with the self introduction of the WFH delegates Mr Mark Skinner-President WFH, Dr Alison Street-VP Medical, Robert Leung-Regional Program Manager Asia and Western Pacific and Mr Antonio Almedia-Programs Director.
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Mr. Robert Leung spoke in length based on the questionnaire assessment report prepared by the WFH. All the participants shared about their lobbying efforts with the respective state governments. Mr. Sathyanarayanan spoke about lobbying and advocacy efforts in Tamil Nadu state. Mr. Nicols, Dr. Anburajan, Mrs. Shantimala appraised their efforts on the advocacy issues. Dr. Nalini from Pondicherry enlightened about the lobbying efforts in Pondicherry. Mrs. Ranjana Ramchandra, Mr Prem, Mr Somu and Dr. Cecil Ross spoke about the Karnataka state lobbying. Mr. Maganti Prasad from Vijayawada and Dr. Venkatnarayana from Hyderabad discussed about the problems faced in Andhra Pradesh state lobbying. Dr. Annamma Kurien also spoke on the unavailability of AHF in their government hospitals. Mr. Raghunanthan and Mr. Prabhakaran told their headway in the Kerala lobbying.
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| The WFH delegation was quite impressed by the Tamil Nadu model of lobbying with the Govt. since the monetary support for the AHF was sanctioned from the State Budget. |
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| Round Table Conference at The Ashok - New Delhi |
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Meeting with WFH delegation at HFI |
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HFI had organized a short discussion and meeting with the WFH delegation held at Head Office on 1st Nov. 2011. The CEO, Rtn Wg. Cdr. (Retd.) SS Roychoudhury welcomed the WFH team and the other participants from HFI namely, Mr H.M. Sreedhar Rao, Mr Mukesh Garodia, Mr Sanjeev Arora, Dr Devila Sahoo and Mrs Indira Venkatraman. President, Dr. K.Ghosh, VP Development, Mr. Vikash Goel and VP Medical, Dr Cecil Ross were unable to attend this meeting due to some unavoidable circumstances.
After the introduction session, CEO presented an overall growth of HFI’s during last 10-yrs. The areas covered in the presentation were over all treatment and |
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care towards PWHs, Product Safety, Care Facilities, Training, Advocacy, Lobbying, PIL, Collaborator and Networks, Resource Mobilization, Programme implementations and other initiatives, Communication & Documentation, Major Achievements and Difficulties faced and the Road Ahead etc. |
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Mr. Mark Skinner stated that the information presented by the CEO was very useful as it helped him to have a clear picture about activities of HFI the same time he expressed that all the chapters and HFI should share a common vision to work more effectively. The WFH team appreciated the efforts of National Hemophilia Registry and acknowledged that NHR will be a very good source for data management.
Mr. Mark Skinner also emphasized that HFI requires building a stronger recognition and wide visibility nationally and internationally. He also stated that HFI should now concentrate on developing Regional Training centers and a nexus between Production of AHF and Care of the Hemophiliacs. |
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Mark Skinner stated that Programme driven fund raising should be introduced in HFI. On this the CEO clarified that HFI’s corporate fund raising programme is essentially based on the premise of fitting our objective with the CSR objective of the corporate. Mr. Skinner suggested that the participants of IHTC fellowship should be chosen from those states where awareness regarding hemophilia is very low.
Dr Alison Street, VP Medical WFH, thanked the whole team of HFI and stated that they had wonderful time and experience during India visit. She also appreciated HFI for making lots of progress and it was a positive change in view of the fact that now Indian Government is taking interest in Hemophilia Care. |
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The WFH team suggested that HFI should have a detailed strategic planning for the next five years. Mr. Robert Leung added saying all the chapters should submit their plans to HFI and HFI should prepare a final plan. Hence, HFI should submit a detailed plan of action regarding Regional Trainings and Fellowship Programme along with the budget to WFH, so that WFH can consider supporting HFI in this regard. After the discussion, Mr. Mukesh Garodia presented overall view of the activities of Young Voices on Hemophilia in India. Summarizing activities covered under DANIDA project supported by Danish Hemophilia Society & Disabled People Organization Denmark, he informed that they have been organizing various camps at the regional and national level with the aim to |
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provide a platform for the youth where they can bond, express, share their experiences, hone their personality and learn leadership skills so as to become the future leaders of HFI. |
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Mr. Mukesh Garodia also informed that in the coming youth assembly the youth group Manual will be passed and then it will be shared with hemophilia Federation (India). He also stated that HFI does not have any allocated fund for development of youth group, therefore, they are putting their efforts to raise fund for youth group. He also informed that they are trying to launch an interactive website and for that they have funds for next three years. He also told that for this website they need technical support from the medical team of WFH.
Mr. Robert Leung suggested that Indian doctors can better understand the problems of the Indian hemophiliacs rather than doctors of WFH. Mr. Mukesh Garodia told that they are open to all kind of suggestatios from WFH team regarding this website.
In the concluding session, Mr. Mark skinner emphasized the important of making HFI’s strategic planning for next 5 years. Mr. Robert Leung said that after returning they will send the SWOT analysis under taken during round table conference which will be useful in preparing the plan.
Then mementos were given as a token of honor and fellow feeling on behalf of HFI and Delhi chapter to all the members of WFH team.
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