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Welcome to HFI,

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Hemophilia is a genetic, life threatening bleeding disorder. In persons with hemophilia (PwH) blood does not clot normally due to deficiency or absence of clotting proteins called Factors. PwH tend to bleed internally and externally even with a minor injury. The disease is a lifelong bleeding disorder, incurable in nature and a very expensive to manage in terms of medication and care. Recurrent and prolonged bleeding into joints and muscles can lead to permanent disability. Bleeding from the sensitive organs can lead even to death.

Since 1983, Hemophilia Federation India (HFI) is the only national umbrella organization in India working for the welfare of the PwH through a network of 71 chapters spread over four regions. We aim to reach out to PwH and provide total quality care, education, make treatment available at affordable cost, psycho-social support, and economic rehabilitation and thus help them in improving the quality of life without disability and free of pain.

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All donations to Hemophilia Federation India are 100% Tax-exempted under Section 35AC of Income Tax Act 1961.

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Receipt of ICMR award by Dr Ghosh for Hemophilia Care in India
Our President, Dr K. Ghosh has been awarded by the Indian Council of Medical Research (Dr Omprakash and Kunti Oration) for his work and services rendered towards Haemophilia Care.... Read more
       
  WFH delegation visit to India
Reports on meeting with WHF delegation at HFI, round table conference at New Delhi, Chennai... Read more
       
    HFI ran for blood brothers at Delhi Half Marathon-2011
HFI participated in the Airtel Delhi Half Marathon-2011 (ADHM) held at Jawaharlal Nehru Stadium on 27th November, with the sole purpose of spreading public awareness on hemophilia (bleeding disorder), mobilizing resources and branding the organization. .... Read more
       
    Successful Lobbying with Union Health Minister
A successful lobbying with Mr Ghulam Nabi Azad, the Hon'ble Union Minister of Health & Family Welfare, Govt. of India was held in his office at Nirman Bhawan, New Delhi on 29th Oct. 2011. HFI was represented by the Dr K. Ghosh-President, Rtn Wg Cdr SS Roychoudhury-CEO and Mr Mukesh Garodia-Youth Group Representative. The Ministry was represented by Mr B. K. Prasad IAS-Joint Sec., Mr V S Ramachandran-Officer on Special Duty and Ms Vinita Srivastava of NACO. The minister was kind enough to give a patient hearing to the HFI delegation & assured all possible help & directed his team to look into the requirement of HFI.
       
    Firstever Youth AGM at Goa
For years, HFI has been focusing on the youth issues and youth development consistently and effectively. Various activities, camps and programs have been undertaken with the objective of creating a platform for the young voices in India to express themselves and to create a second line of leaders who are ready when needed to join the mainstream of HFI's activities. With the firstever Youth Assembly having conducted and Constitution drafted have marked its beginning of youth commitment in hemophilia movement. Youth group organized its first AGM from 2-5 December 2011 at Bambolim Beach Resort, Goa.
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The journey to become a Doctor was not easy.
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Meet Vinay & explore his success mantra.
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Of will, and the way ahead!
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Meet Munna
 
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According to our records out of of 16,672 hemophilics (so far identified by us), most are disabled to varying extents. Despite of our constant efforts for the last 28 years, hemophilia still has not been included under the Persons with Disability Act 1995. Hence, they have been deprived of their basic right to health & life.  Read more...
 
 
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