Home Management, Home Treatment Both preventive and as-needed therapy can be done at home. Many people learn to do the infusions at home for their child or for themselves. Home treatment has several advantages:

• You or your child can get treatment quicker when bleeding happens. Early treatment means that fewer complications are likely to occur.
• Fewer visits to the doctor or emergency room are needed.
• Home infusions cost less than treatment in a medical care setting.
• Home treatment helps children accept treatment and take responsibility for their own health.

Discuss options for home treatment with your doctor or your child's doctor. A doctor or other health care provider can teach you the steps and safety procedures for home treatment. Another valuable resource for learning about home treatment is through hemophilia societies.

Management of Bleeds For Joint Bleeds Remember - DO NOT DO THE FOLLOWING Apply anything Hot Massage with Oil Apply Iodex or other Balms Take Aspirin or Brufen or similar drugs Attempt to walk with the affected Limb

Generally in the management of Hemophilia bleeding, R-I-C-E therapy is followed

‘R’ stands for Rest and Immobilisation. The joints need to be rested as much as possible.

‘I’ stands for Ice application. Apply a wet towel over the joint. Crush ice, wrap in another towel and put this over the joint covering the whole surface. Apply for 3 minutes and give a gap of 2 minutes and then reapply. Continue for an hour. Repeat every 6 hours till the pain is better.

‘C’ stands for Factor Concentrate. Where the family can afford, factors should be administered at the earliest sign of impending bleeding. Where the resources are limited, factor is administered only if pain and swelling are severe.

‘E’ stands for Exercise and Mobility. Remain immobile for the first 48 hours. Then use splint, if required for 1 week. Start isometric exercises. Gradually increase duration and strength of exercise every week.

Repeated bleeds sometimes lead to persistent swelling and possibly deformity. This is called chronic synovitis. Some patients with chronic synovitis may need treatment with Rifampicin or Radioactive substances injected into the joints. The treatment must be done in a specialized center.

The management of Muscle bleed is similar to that of joint bleed.

Hemophilia Societies/ Chapters

A nationwide network of Hemophilia Societies is an important resource for families and individuals affected by hemophilia. The medical experts in these centers provide treatment, education, and support. They can teach you or your child how to do home infusions safely. Center staff can also provide information to your doctor. 

People who get care in these centers are less likely than those who get care elsewhere to have bleeding complications. This lack of complications may be due to the centers’ emphasis on prevention of bleeding and the education and support provided to patients and their caregivers.