Established in 1983, Hemophilia Federation India is a self-help NGO run by Persons with Hemophilia themselves, with help from medical fraternity. We represent India as National Member Organization at the World Federation of Hemophilia based in Canada. We also work in close collaboration with World Health Organization (WHO) and National Aids Control Organization (NACO).
Registration Details
- Registered under Societies Registration Act XXI of 1860: Registration No. 15342 dated 26/02/85
- Income tax exemption under section 35 AC (100%) and 80 G (50%) of IT Act 1961
- FCR Act 1976: No. 231650667 dated 20/04/93
- Partnership with NACO (National AIDS Control Organization), Government of India.
- Licensed to Import Life Saving Drug - Anti Hemophilic Factor (AHF)
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Our Major Success
- We have a network of 72 chapters (48 affiliated and 24 Non-affiliated chapters) spread across India.
- We are the only organization in India that provides structured training to our medical and paramedical practitioners.
- We have two International Hemophilia Training Centers at CMC Vellore and KEM Hospital Mumbai. Physiotherapy College in Pune trains physiotherapists for hemophilia care and St. Stephens Hospital in Delhi trains laboratory technicians in running standardized hemophilia tests.
- We have made WHO standardized diagnostic tests available to our PWH. In addition, all Chapters are attached to diagnostic facilities locally.
- Our Special Needs Cell for HCV/ HIV positive PWH supports them by providing lifelong subsidized treatment including Anti-Retroviral Therapy Drug.
- We also have started National Hemophilia Registration (Record) to locate undiagnosed persons and children with hemophilia.
- We have been able to update records of support to more than 16,000 Persons with hemophilia in our national hemophilia records.
